CCCF IBD Foundation / CCCF 爱在延长炎症性肠病基金会

Overview

CCCF 爱在延长炎症性肠病基金会 is presented as a China-based nonprofit serving people with inflammatory bowel disease through training, support, advocacy, and research.

Current Profile

In the episode, the foundation bridges clinic and daily life. Its work includes professional training, patient education, health kits for newly diagnosed patients, camps for children and adolescents, World IBD Day advocacy, research, fundraising, and a staff that includes people living with IBD. Its stated approach—“education is the best medicine” and “help people help themselves”—frames knowledge and agency as scalable complements to direct financial aid.

Key Characteristics

• Founded in Hangzhou in 2016 according to the source, initially through donations and volunteer labor.
• Organizes its work around training, patient support, advocacy, and research.
• Includes patients among its full-time staff and uses lived experience in public communication.
• Runs health-kit and youth-camp programs intended to improve information, confidence, nutrition, psychological support, and connection.
• Relies on clinicians, patients, families, donors, medical students, and volunteers rather than treating IBD support as a clinic-only task.

Evidence

• Origin and structure: VOL.113消化内科｜从“少见病”到“常见病” 你应该认识它了｜IBD日专题 describes a 2016 Hangzhou founding, initial funding, volunteer beginnings, and later staff composition.
• Program model: VOL.113消化内科｜从“少见病”到“常见病” 你应该认识它了｜IBD日专题 groups the work into training, support, advocacy, and research and names professional education, camps, health kits, and World IBD Day activities.
• Patient agency: VOL.113消化内科｜从“少见病”到“常见病” 你应该认识它了｜IBD日专题 presents education and self-help as ways to extend benefit beyond one-time financial assistance.

Qualifications

The foundation’s founding date, funding, staff count, project reach, cost comparison, mission, vision, and outcomes come from one 2024 episode and are not independently audited here. The page does not imply that education or peer support replaces qualified medical, nutritional, psychological, or social care.

What Changed

• Created the source-scoped nonprofit profile.

Relationships

• Chen Yan / 陈彦 (IBD Doctor) - co-initiator and board chair identified in the episode.
• Meng Jun / 孟君 (IBD Advocate) - patient and full-time communications worker identified in the episode.
• Li Jingnan / 李景南 - clinician participating in the co-produced public-education episode.
• IBD Patient Education and Peer Support / IBD患者教育与同伴支持 - operating model linking knowledge, peers, clinicians, families, and public advocacy.
• Inflammatory Bowel Disease Management / 炎症性肠病管理 - disease context the organization supports beyond the clinic.